INPUT

Informationen on the survey
of study participants

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Share your eyperiences with us!

You are taking part in a clinical trial. How are you doing?

The Department of Clinical Research at the University of Basel has been commissioned by the Swiss Federal Office of Public Health (FOPH) to conduct a countrywide survey of clinical trial participants.

What’s the survey for?

The survey is intended to find out how you are experiencing being a clinical trial participant. Its findings and conclusions will be used to reappraise the provisions and procedures adopted in human research and improve these where appropriate, in the interests of all such participants.

Why is it important that I take part?

By taking part in this survey, you can help give a voice to all the persons who participate in such clinical trials, and thereby help ensure that future trials of this kind better address and accommodate the needs of their participants. 

What’s in the survey?

- The survey is being conducted in the form of a questionnaire.
- The questionnaire consists of xx questions on your experiences of participating in the clinical trial in which you are involved and your motivation for doing so.
- You can complete the questionnaire either online or in paper form.
- The survey is entirely anonymous: at no point will your answers be attributable back to you. 
- The questionnaire is available in German, French, Italian and English.
- Completing the questionnaire takes about 15 minutes.

How do I take part?

Please retain the flyer you have received!
It contains the participant number which you will need if you wish to complete the survey questionnaire. You can complete the questionnaire either online or in paper form. 

How to take part in the survey online:

1. Click on the red button "Take part in the survey" to access the survey questionnaire.
2. Select your preferred language.
3. Enter your participant number.
4. You can now complete the questionnaire.

 The participant number will not allow any of your answers to be traced back to you. It will only be used to determine which clinical trial you are involved in. Please do not divulge this number to any other person.

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Please note that only fully completed questionnaires can be evaluated. If you are completing your questionnaire online, you should also do so in a single session, as you will not be able to save the document and return to it later.

Your participation in our survey will not lead to any follow-up contacts, and your contact details will not be collected or stored.

If you wish to complete the questionnaire in paper form, please contact your clinical trial team, who handed you the flyer or contact the project management at input@usb.ch / 061 328 50 91.

Who can I contact if I have questions?

Katja Suter, PhD
Project manager for the study participant survey
Department of Clinical Research
061 328 50 91
Monday to Friday from 9 a.m. to 12 noon and 2 p.m. to 3 p.m. 
input@usb.ch

 

Frequently asked questions

Is the survey anonymous?

Yes, the answers to the questions do not allow any conclusions to be drawn about your person.

Why was I invited to take part in the survey?

People who are currently participating in a clinical trial are invited to take part in the survey.

What does the survey contain?

The questionnaire contains questions about your participation in the clinical trial. Your answers will give us an insight into how you experience your participation.

Who has designed the survey?

The survey was developed with the participation of patients [→ Learn more about patient involvement] by a project team from the Department of Clinical Research at the University of Basel and the Federal Office of Public Health FOPH.

What if I don't give the right answers?

There are no right or wrong answers. The important thing is that you answer the questions honestly.

Will I be contacted again if I take part in the survey?

Your participation in the survey will not result in any further contact. We do not collect any contact details.

Why do I need a participation code?

There are very different categories of clinical trials. We want to be able to allocate the participants' feedback to these categories. The participation code is used for this purpose. However, it is not possible to identify you personally. 

Why can't I temporarily save the questionnaire?

It is not possible to interrupt the completion of the questionnaire and resume it at a later date.

 

Im Auftrag des Bundesamts für Gesundheit BAG
Sur mandat de l'Office fédéral de la santé publique OFSP
A nome dell'Ufficio federale della sanità pubblica UFSP
On behalf of the Federal Office of Public Health FOPH

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© Departement Klinische Forschung, Universität Basel c/o Universitätsspital Basel, Februar 2024